Heart Warrior Stories
Every Heart Warrior has a story of courage, resilience, and love. With permission from families, we share a few of those journeys here to honor the strength of these incredible kids.
We only post stories with full permission from families. Names and identifying details are shared only when explicitly approved.
Meet a Heart Warrior
Katherine is our brave Heart Warrior. She was born with a complex congenital heart condition called HLHS (Hypoplastic Left Heart Syndrome). From the beginning, she has faced more in her young life than most people ever will — hospital stays, procedures, appointments, and long days that require incredible strength.
But Katherine is more than her diagnosis. She is bright, determined, and full of personality. She keeps going, even when things are hard. She has taught our family what real courage looks like — the kind that shows up quietly, day after day.
AllHeartWarriorsMatter exists because of kids like Katherine. Our mission is to bring comfort and joy to children with congenital heart disease and their families through small acts of love, creativity, and community.
Story shared with full family permission.
Coming Soon
We are currently gathering stories from Heart Warrior families. Please check back soon — or reach out if you would like to share your child’s story.